Saturday, August 31, 2013
Wednesday, August 28, 2013
Monday, August 26, 2013
Sunday, August 25, 2013
When S was younger, he wanted a bike so bad. It was all he talked about, all he wanted. So for his birthday, he got a bike and helmet. Even with training wheels, he fell often so we added knee and elbow pads :p
S loved the idea of riding a bike but he had so much anxiety over it he rarely wanted to do. Attempting to learn to ride without training wheels over the last three years has been futile--he was just too anxious.
And then he started therapy through the ADHD clinic :-) One of the things they have been working on is his anxiety issues and he has been doing awesome at overcoming some of his fears.
I wasn't there when he learned to ride solo but when I pulled up, he was raring to go and show me his newfound skills. He was so excited and proud.
And then he got really anxious about it because he forgot his helmet. Oh, anxiety, you do love to join us on every occasion!
Friday, August 23, 2013
I think I'll make up a big batch of pasta salad with extra veggies so he has something quick and easy and relatively healthy to chomp on.
What do you keep on hand when your kids go on a neverending eating streak? I need ideas!!
Thursday, August 22, 2013
Tuesday, August 20, 2013
He goes absolutely still and then his whole body begins to tremble. I freeze, my breath catching in my throat as I think about the complete and utter meltdown we are about to see. B does NOT step on yellow lines. Ever. He is shaking hard at this point and I wait for it--but it does not come. He takes a deep breath and very deliberately steps on the next yellow line. He pauses, looks up at me and grins and then deliberately steps on the next one. And I become the crazy person in the parking lot--I cheer for him and we clap together and maybe there may have even been a little jumping up and down.
I told his Dad all about it and yesterday we go to Target. The Mister asks B if he stepped on yellow lines yesterday and B grins at him and says "yup." The Mister asks if he can do it again and he tells us, "YEAH!" We all get out and B jumps onto a yellow line and yells, "I DID IT." Then he tells us one by one to step on a line (something he has struggled with in the past--not only could he not step on one but neither could any of us) and each time we do he yells out "YOU DID IT." And there is much cheering and clapping and dancing and yes, we were the crazy people in the parking lot two days in a row.
But you know what? Being the crazy person in the parking lot felt pretty darn good because B stepped on a yellow line and that is HUGE for him. It deserves happy screams and cheers and hand clapping and dancing. I don't know if it will last, if he will continue to be able to step on yellow lines. But for right now he can and it is still new enough that I will happily be the crazy person in the parking lot :)
Wednesday, August 14, 2013
Sunday, August 11, 2013
Yesterday's trip to the Farmer's Market provided the veggies for a pesto-based dinner:
In blender/food processor, pulse two tightly packed cups of basil, a large clove of garlic, a half cup of walnuts (I prefer the taste to pine nuts), and a half cup of olive oil. Then stir in a half cup of Parmesan and add lemon juice to taste. If its too thick, add in a little extra olive oil.
Saute together 2 cups cubed summer squash (yellow), half a cup of fresh green beans (cut into one to two inch pieces, half a cup of thinly sliced carrots, and a tablespoon of Italian herbs. Cook until tender but firm. After heat is off, toss in a half cup of halved cherry tomatoes
Toss veggies and half a box of cooked tri-color rotini with half the pesto sauce. Add more pesto if the pasta isn't coated enough and then enjoy the rest of the pesto the next day on sandwiches ;-)
My kids like to sprinkle a little more Parmesan on top before they eat :)
Friday, August 9, 2013
Thursday, August 8, 2013
But at least our orthopedics trip was a double appointment so it was only one drive instead of two ;) S was in to have her incision sites checked out (surgery two weeks ago!) and he got the all clear to be back to normal activity :) He is happy he can go crazy on the playground again! He was a bit confused about how quick his portion of the appointment went--Dr. J came in, looked at the incisions, checked to see if any dissolveable stitches were poking out, told him it looked good and he could go back to normal activities and that was that.
Iz was there on referral from her pediatrician to check over her legs and feet because of the toe walking and a slight limp. The limp is completely gone and she has started walking a little more normally--she still gets up on her toes but not as much. He said everything looked good structurally and the fact that she is getting those feet down more is good. Since the limp is gone, we are back to wait and see since the toe-walking can be considered normal up to age five.
He looked over her x-rays from Monday and decided we would go ahead and cast today instead of waiting for next week--if he had been on-call Monday, they would have gone ahead and casted her then instead of waiting since he didn't think the amount of swelling she had should have affected a cast. He cut off the splint and checked out her arm and movement and then she got a purple cast--she is much happier with it since it is lighter, less bulky, and he did not include her wrist and thumb in the cast so she can use her hand again. Her break is up on the humerus so she didn't need her wrist immobilized for the next three weeks. In three weeks we go back and she should be able to get the cast off.
When we got there, we were the only ones in the waiting room and she had fun walking around and bringing me magazines off the tables :p She loves to just go, pick one up, bring it to me, go back, repeat, over and over LOL The tech came out and called us back and she did NOT like being in the EKG room. She fussed and cried as soon as we walked in and so we got a weight of "about 37 pounds" because she wouldn't hold still long enough for a more accurate weight. Height was a no-go as well so they got a ballpark figure from the one time she held still for a second :\
She was not having any of it when it came to getting the stickers on for the EKG so the tech asked if he could get her a sucker--we didn't even open it, she just held it and looked at it and he got the EKG first try :p
Next we headed to Dr. E's office--she opened her sucker and started licking it and when the doc came in, she fussed at him about having to lay down for an echo until we reminded her she had a sucker. She HATES having people touching her scar so echoes are usually one long scream-fest but that sucker kept her calm and quiet and she laid there watching the screen working her way through that tootsie pop ;-)
The extra heart sounds the doctors were hearing and the clicking I sometimes hear are expected and normal for her--her cardio said that some of it is caused by the fact that she has two superior vena cavas instead of just one (a normal one has a branch from the left and one from the right and they come together in a y before entering the heart. Iz's branches never came together so she has two separate single vessels that feed into her heart. They come from the correct places and both connect to the proper chamber of the heart, they just are separate instead of a y) and some of it is simply a side effect of having surgery and having heart tissue disturbed and "remapped". He says it isn't something to take for granted that the extra sounds are always OK and that is one reason why she has yearly appointments so we can take a good look at her EKG and echo and make sure there are no other problems causing extra sounds. As long as her tests look good (for her), the sounds are just her normal.
The best news of all? Her right pulmonary artery stenosis is GONE. Her surgeon thought there was a chance the narrowed artery could open on its own and grow to match the left once her heart was fixed and the right side was being used normally (the left was overworked because of the blood flowing the wrong way through her VSD and being overcirculated through her lungs) and he was right! It has caught up and her function is beautiful :)
Dr. E said that her heart will never be "normal" because her anatomy and surgery means her EKGs and heart sounds will always be "off" but her function right now is great and at the moment, she has no restrictions. She has her own "normal" and he is optimistic that she will hold steady for a long while. Just don't forget to keep those yearly appointments to make sure ;-)
Wednesday, August 7, 2013
Tuesday, August 6, 2013
|holding out her injured elbow and demanding a "snap" of it|
|telling me she has an ouchie|
|Mad that I asked if she had any other ouchies and was no longer paying attention to her elbow|
|Leaning on the wall telling me her ouchie is an owie|
|showing me her "cast"|
|finally comfortable enough to sleep|