Today was quite the busy day! We had OT first thing. W was a little cranky--I had to wake him up at 6:30am to feed him breakfast because he could not eat or drink after 7am. By the time Miss M got here, he was mad and uncooperative. She was patient, though, and got him distracted enough to play a bit.
After OT, we were off to the Children's Hospital for yet another swallow study. We do them about every 4-5 months and are always disappointed by the results. W threw a big massive tantrum over having to sit in the radiology chair and refused to drink his barium solution. He was so hungry! They gave him a graham cracker and a car to take home and that calmed him down and then he drank 2 ounces of thin liquid in 17 seconds and had no aspirations or penetrations! YAHOO! They want us to continue to thicken for a few days at half the amount of thickener to ease him from nectar to thin but after that he is cleared to drink normally :) The SLP did say to continue with his very thin straws for awhile since his last swallow study showed he only had penetrations when he took big gulps. We are to watch for signs of aspirations, keep him on the controlled drinks via tiny straw, and when he's doing fine on thins with the straw we can slowly start a transition to thicker straws and open cups.
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