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Wednesday, August 8, 2012

3 month post-op cardiologist visit

Iz was mostly cooperative during her EKG but she let it be known that she did NOT like the Echo. She does not like her scar to be touched by anyone but me and occasionally Daddy and even then, its only when she asks for it to be touched (she loves to be massaged and asks for it daily). Poor little mite looked so betrayed when we let Dr E continue to press the wand on her scar :/

It was a great appointment, though! Her blood pressure was really great, 94/60. She was 29.5 inches and 19 lbs 13 oz--gains in length and weight :) Last appointment back in May two weeks after surgery she was 29 in and 14 lbs 4 oz so Dr E was quite pleased with her growth.

The echo shows that her right pulmonary artery is still half the size of the left one. But it does not affect her at all so as long as it doesn't start restricting further, we should be fine. Dr E said that even if it does start restricting, the left will pick up the slack and we wouldn't see any outward signs and it would have to be picked up on echo. Fingers crossed that it just hangs out as is and never needs intervention :p

There are no leaks around her patch and he can see where her heart tissue is growing over and across it--he said eventually it would be completely surrounded by her heart. Reminds me of a tree we saw one day when we took the kids to the natural history museum; it was growing around and over a sign pegged to it. Won't be too long before the sign is completely enclosed by the tree.

The best news of all was that her heart is back to normal size :) We were warned that the enlargement would persist for months, maybe even a year, so I was hopeful that it would have gone done some but was not expecting to hear it went all the way :)

We have been cleared for yearly visits. One hand, that is fantastic! On the other hand, eek, I have to wait an entire year to be reassured that nothing has gone wrong? OY.

6 comments:

  1. I totally know how you feel on the yearly visits.I was so nervous after the frist 6 month mark.I wanted so bad to know how his heart was doing.
    That is great news that you got a yearly app.Great news too about her weight.What a great app.
    Take Care

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    1. Lol--it was hard enough waiting three months! I'll just keep reminding myself that a year is awesome :p

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  2. That's great news! So glad she is doing well.

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  3. What a GREAT report!! I know what a relief it must be. I totally hear you on the whole waiting a year. Such a double edged sword! It's just so hard no knowing exactly what is going on inside! It is also super exciting that her heart size is back to normal!!!

    We take Annie to the cardiologist on the 21st for a 6 month check (even though she is almost a year and a half from OHS...she is still on lasix so has to be seen)and I am already wondering how on earth they are going to get an 18 mo old to cooperate for an echo. She HATES anyone to touch her scar for any reason. Hopefully some Dora on the iPad will keep her mind occupied!

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    1. I honestly was expecting to have to schedule a sedated echo because she gets so upset at having to lay on her back plus having her scar touched. Dr E is very calm and patient and kind and got her through it. By the end, she had her arms around my head while I held her upper body so she wasn't laying flat--seemed to make her feel a little better :p

      I hope Annie is cooperative and has a good visit!

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